Rare and black

Individual Author(s) / Organizational Author
Rare and Black
October 2023
P4HE Partner Organization
Abstract / Description

At Rare And Black, our mission is to empower and uplift Black patients living with rare disorders by raising awareness, promoting advocacy, driving legislative change, and improving access to crucial resources. Through unwavering dedication and collaborative efforts, we strive to eliminate the disparities and inequities faced by these individuals, ensuring they receive the support and care they deserve. By amplifying their voices and driving systemic change, we envision a future where every Black patient with a rare disorder can live a life of dignity, understanding, and equal opportunity. (author abstract) 

Artifact Type
Reference Type
Priority Population
P4HE Authored